Our trip to New York or can I go for a car ride??

For those of you who don't know we are going to attend the Jacob's Cure Canavan Research Summit & Family Conference next weekend in Harrison, New York. What that means is if you are a facebook friend of mine you are going to have to see me count the days down until we leave. Lucky you!! lol  We are very excitied to go to the summit. We get to meet many of the wonderful familes we have been talking to and meet all the researchers that have been working so hard to find a cure to Canavan. To read more about the Summit please see the news article located at http://www.lohud.com/apps/pbcs.dll/article?AID=2011105230319 . It has some really great info in it!

In other news I have received two years free hosting from Hostable Web Hosting (http://www.hostable.com) and registered lilysfight.org through Go Daddy! in our first steps to create The Fight For Lily's Future Foundation which will raise money for Canavan and Epilepsy research. We are seriously in our infancy right now. The website is going to take me a while to get going. But when it is ready I will post on here and let you all know!

Also we have another fund raiser coming up in July. Please keep an eye here or at http://4pawsforlily.blogspot.com/ for more information about that.

As always thanks for reading!!