So got the results back on Lily's MRI on Friday. Nothing has changed in 14 months, which is most excellent.
Now we are getting ready to attend the Jacob's Cure Canavan Conference and Family Summit in NY at the beginning of June. We are really looking forward to meeting the other families and the researchers!
This week will be spent running her and there gathering things I think the researchers may want, like the MRI, test results, ect.
I know this is just a short update but you know what they say....no news is good news!
As always, thank you for reading!
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