Ok so we have yet another possible diagnosis for Lily but this one is under related to the seizures and the Canavan. They are thinking that Lily has systematic Asthma. So she is starting an inhaler today. So we will see how that goes.
Sorry if you are waiting on an e-mail back from me. I have been terribly busy with the fund raiser stuff and paperwork for Lily and I am still reeling a bit from her Canavan diagnosis.
Lily has a cold right now which makes me terribly nervous. Illness lowers the threshold on seizures so please keep those prayers coming!!
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