Test results

Well, we got Lily's Canavan test results back. Lily has a mild (or partial) form of Canavan.  In a nutshell what that means is she will not out grow her seizures. Long term the Dr feels that it most likely will not progress but that can't say for sure. Lily will need to have various therapy evaluations every 6 months as well as having her optic nerve examined to make sure that the disease is not progressing. So that's all I really know right now...well no there is more that I know but its very complicated and it really doesn't change anything.