Slacking off again!

I know, how terrible! I've got some thing to update you all on and a request. But first, the update...

Lily very much enjoyed summer school and Taz began riding the bus. That went well! He's doing well on the bus and hops right up when the bus get's here. I was a little worried about that as he is not big on car rides, but he seems to have no problem with the bus.

Lily recently got glasses and looks cute as a button. I don't have any pictures on my computer right now of her in her glasses but I will get some soon and add them here. She is now a big first grader and as always loves school!

A few weeks back we had a bout with the stomach flu. I am happy to report that while Lily did get the stomach bug, she did NOT have a seizure. We are now at 16 months since her last status seizure and 10 months since a seizure of any kind! This has been the very longest she has gone since developing epilepsy! Yay! Keep your fingers crossed this continues!!

Ok so here is the not so good news.....Lily is having a lot of trouble in school. Let me tell you Lily's different DX's. She has ADHD (combined type), Epilepsy and a mild variant of Canavan Disease. Now we (we being me and the school) are running into a wall here on how to help her. She cannot slow down, ever for any reason! This makes it very difficult for her to learn because she rushes through things. Also some days she will be spot on, know everything she should, get her work done, etc, etc with no problems. Other days she is off, the things she knew before are totally gone (literally like she never heard of them before), etc, etc. There seems to be no rhyme not reason to when and why this occurs. Here is my request to you, Dear Reader. Please, please, please share this blog post with everyone you know! We need some help here to figure out what is going on and how we can help her learn. The school is more than willing to do whatever it takes to help Lily, but I firmly believe that my daughter's education is not just the school's responsibility, it is mine as well. So please share this post and if you can think of anything that may help please drop me an e-mail at lilysfight@yahoo.com.....also if you know of any good ADHD groups or websites please let me know!

Also Lily and Taz were recently in our local paper....you can read the article here! There is a picture of Lily with her glasses on in that. ;-)

I know this update is not very long but there is not really very much to update you on, which is a good thing!!

As always, thank you for reading!!