Well Saturday night Lily had another seizures, just two and half weeks after her last. This one was different than the others. Her Lamictal was upped on Wednesday, so we are thinking that instead of controlling the seizures it is actually making them worse which can happen with meds. I was very hopeful with the Lamictal, but it looks like the honeymoon period is over. Lily was admitted that night due to a drop in her oxygen. She is home now and doing well. Though I did keep her home from school today. I really feel that I need to keep a close eye on her until we figure out what's going on with the meds. Waiting to her back from her Neuro now. I think now is the time to take her up to Cleveland Clinic for a second opinion just to see if they have any other suggestions.
I must admit that I am pretty down right now. I know there are other meds that we can and will try, but then that brings along with it the worry of side effects, a possible increase in seizures, bad reactions to meds, etc, etc. I wish the FDA would hurry up and approve the Trigeminal Nerve Stimulator! Though Lily won't qualify for it until she has been on 4 meds with no relief. Looks like we may be heading that way.
Now the million dollar question....did Taz alert? Well, I had been telling people no, until I thought back to that night. Lily woke up right before the seizure. Tracy was on one side of her and I was on the other. Taz was at her feet. Tracy and I were both so focused on Lily, that I can't really tell you what Taz was doing. Once I got up to call 911 he moved up on her. At one point Tracy was having a hard time keep Lily on her side. She kept trying to turn on her back (sooooo not a good thing when she is throwing up during the seizure). Taz actually came up and pinned her on her side so she couldn't flip over.
I took him out before we left for the hospital. When we came back in the house, the EMT's had taken Lily out to the ambulance. Taz was going nuts looking for her. He rushed down the driveway and right into the ambulance! Normally when we walk out the front door we go straight to my car, so I was quite surprised when he seemed to know exactly where Lily was. Great nose on that dog! So Taz went for his first ride in the ambulance. He did excellent! The EMT's were very impressed on how well he behaved. So I got to be proud SD mama. lol
WHen we got to the hospital an EMT got him out of the back and handed my his leash. They got Lily out and down the hall we went. We were behind the stretcher with Lily on it and Taz could not see her. He was very anxious until I maneuvered him around so he could see her. Then he settled right down.
Once we got settled in a room we were bummed rushed by a few of the ER staff wanting to know if they could pet Taz and give him some doggy biscuits. I said that was fine and they fawned all over him, which of course he loved! But he maintained his gentlemanly SD status, just sitting and basking in all the attention. We saw several staff members that night and all of them commented on how well behaved he was. Taz did his normal Taz thing, curled up and went so sleep.
Eventually Lily woke up and wanted Taz up on her bed. The bed was pretty high up and Taz was afraid to jump. So I lifted him up (yes I am the man! lol) on the bed. The bed was pretty narrow and he was afraid that he was going to fall. So he little by little inched his way up to Lily.
Once she got admitted and we got in a room I put him up on that bed (yes lifting him again but this bed was not as narrow, so he was able to move around a bit). He settled down on her bed and (shock!) went to sleep. Lily, however would not go to sleep. I put on the TV for her and sat down on the couch. The Neuro on call woke me up an hour and a half later. I am so glad that Taz is so well behaved! He was right where I left him on the bed with Lily. While I was sleeping the nurse had come in and gave Lily her meds and checked her vitals. Taz stayed put! Good boy!
Taz did wonderful for his first seizure emergency with Lily. Oh and there has been the question of did he prealert. Yes, he did we however we failed to recognize it. See he was acting like a normal pet dog all day Saturday (except when we were at the stores) and that night. He doesn't normally do that. He always listens well. I just dismissed it as him settling in with us. Now I see that he was picking up on something that I wouldn't acknowledge (yes I had signs that day from Lily that one was coming. I dismissed those, not wanting to believe). Anyway, since the seizure has been and gone he is back to his normal mannerly self. I need to start paying more attention to what he is doing and to my own instinct. It's just hard! Every time her meds change or are upped I hope and pray that they will control her seizures. Thus far no good.
Please keep my little girl in your prayers. As these seizures get closer together I worry about the damage that may happen to her. There is only one change I want for my daughter and that is a seizure free life.
Thank you for reading.
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