Well Lily is better now (yay) and we got out of it with only one ER trip! And that was NOT do to a seizure. The first night she was ill she could not stay asleep. This really concerned us because we have figured out that lack of sleep or disturbed sleep is a trigger for Lily's seizures. So we took her in to see if there was anything they could do to help us out. I truly love Akron Children's. They never make us feel stupid, etc for our paranoia. They gave Lily some Benydril (sp?) with the promise that she would sleep through the night and she did.
Now that is not to say the other next were a walk in the park. Many times she had some questionable activity. Possibly seizures related and a possible stridor at one point. The possible seizure activity was over before I could blink so we didn't take her in simply because we weren't sure if it was or wasn't. And had they been seizures, they were so short and she was fine that we wouldn't have called the EMT's for them anyway.
It will be one more month till her Lamictal level will be where they want it to for control. Until then she does carry the possibility of having more (truth be told, Lily will always carry that possibility the rest of her life.).
Anyway, on to a happier topic.............20 days till we get her service dog! We are so excited and cannot wait. Within the next 10 or so days we should have her match and I will of course post here with the picture and info on the dog.
Ok, sorry this is so short. While everyone else in the house is better, I am NOW getting it and feeling poorly.
As always, thank you for reading!
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