On the flip side

Well Lily is better now (yay) and we got out of it with only one ER trip! And that was NOT do to a seizure. The first night she was ill she could not stay asleep. This really concerned us because we have figured out that lack of sleep or disturbed sleep is a trigger for Lily's seizures. So we took her in to see if there was anything they could do to help us out. I truly love Akron Children's. They never make us feel stupid, etc for our paranoia. They gave Lily some Benydril (sp?) with the promise that she would sleep through the night and she did.

Now that is not to say the other next were a walk in the park. Many times she had some questionable activity. Possibly seizures related and a possible stridor at one point. The possible seizure activity was over before I could blink so we didn't take her in simply because we weren't sure if it was or wasn't. And had they been seizures, they were so short and she was fine that we wouldn't have called the EMT's for them anyway.

It will be one more month till her Lamictal level will be where they want it to for control. Until then she does carry the possibility of having more (truth be told, Lily will always carry that possibility the rest of her life.).

Anyway, on to a happier topic.............20 days till we get her service dog! We are so excited and cannot wait. Within the next 10 or so days we should have her match and I will of course post here with the picture and info on the dog.

Ok, sorry this is so short. While everyone else in the house is better, I am NOW getting it and feeling poorly.

As always, thank you for reading!

Couldn't escape it

While I know every year we are going to get sick, after all it's just a part of life I am always hopeful that Lily will not. And here we are, still in August. Not even in the fall yet and she is ill. Stuffed nose, sore throat, croup, low grade fever. But despite all that she is pretty much her normal self when awake. "When awake" is normally the time I don't have to worry about things with her.

First off, let me warm you this is probably going to be wrought through with typos. Please forgive me. I am one tired mama.

Anyway for those of you who aren't aware illness and fever both can lower the threshold on seizures. Lily has only ever had one seizure caused by a fever but that was the last fever she had back in May, so we are a bit nervous here. Her fever is just a lower grade fever but it still makes us nervous, that coupled with the fact that she won't have a the level of Lamictal they need in her system for full control for another month and that lack of sleep is another trigger (stuffy nose does NOT make for a restful sleep) walking on egg shells is how we are rolling right now.

Now don't get me wrong if she is going to get sick I would rather it be here while we are at home and not while we are at training for her service dog (26 days! Can't wait!) but I was just hoping we could avoid the whole illness thing until after we got back from getting her dog.

Anyway just a small whiney update! As always thank you for reading!