So I am writing this blog post from a room at Akron Children's Hospital. Lily had another seizure this morning. This one, like the last two were different. We were blessed, however because the amazing and wonderful Dr. Holler was the Neuro on call today. Dr. Holler wants Lily to stay tonight and possibly tomorrow night because they are not able to do a video EEG on Lily till Monday. This is the EEG I wanted a month ago that Lily's old Neuro (yeah we are switching to Holler) wanted to "wait and see" to do. Dr. Holler who saw Lily after her seizure in June had sounded like had she been Lily's Neuro she would have done it. Now Dr. Holler is ordering it. To heck with it all. So glad! LOVE HER!
Anyway, we know Lily seized for at least an hour, if not longer. She had cluster seizures instead of a status and even the after-math of the seizure was different. She slept until about 4:00 pm and then woke up back to her normal self. Yay! I can breath a sigh of relief. When she has such long seizures like that I always worry about long term damage. So far, so good.
She is going to miss her riding lesson at Pegasus on Monday. She is NOT going to be happy about that, but it can't be helped. Hopefully later this week we can go out and she can visit Miss Mollie.
I am so happy she is back to normal. She just looked at me and said "Mom, I had a seizure this morning, but I am ok this afternoon so we are going home tonight!" Funny, fumy girl.
I hope that tomorrow when Dr. Holler see's her like this, that maybe she will reconsider keeping us tomorrow night and just let us come back on Monday for the EGG. Keep your fingers crossed for me please!
As always, thank you for reading!!
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