Wednesday, October 27, 2010

Test results

Well, we got Lily's Canavan test results back. Lily has a mild (or partial) form of Canavan.  In a nutshell what that means is she will not out grow her seizures. Long term the Dr feels that it most likely will not progress but that can't say for sure. Lily will need to have various therapy evaluations every 6 months as well as having her optic nerve examined to make sure that the disease is not progressing. So that's all I really know right now...well no there is more that I know but its very complicated and it really doesn't change anything.

Monday, October 11, 2010

We now have a websites/blog set up with info on Lily getting her service dog. Please visit http://4pawsforlily.blogspot.com

Also I am trying to get caught up on my e-mail but have fallen a bit behind! I will get back to you soon!

Wednesday, October 6, 2010

News and need some assitance

Hiya folks,
So Lily has been approved for her seizure alert dog. As many of you know we need to raise some funds to make this happen. I am not going to get into that until I get all the info from 4 paws (in about a week or so) but I do need some help.

First of all anyone who has any experience with fund raising at all please contact me (lilysfight@gmail.com or contact my on Facebook). I have some questions.

2nd does anyone have a video camera and would be willing to make a short video of Lily for me? Please contact at the info above.

And finally does anyone know where I can buy a cookie cutter that says "Thank you" or "Thanks" that is not too pricey? Please let me know.

Ok will update with more info very soon!

Tuesday, October 5, 2010

Yay!!!!!

Lily has been approved for a seizure alert dog!!!!! Yay! I will have more details tomorrow!