Just a small update

So everything is all good. No more seizures since the last. Though I am still a bit on pins and needles. However, the increase of meds seems to be doing it's job so let's all keep our fingers crossed! I thought Taz's was alerting last night but no he wasn't. He just wanted to cuddle with Lily a bit. He is such a sweetie. Last Thursday we got to do to Cedar Point with the wonderful group called A Kid Again (https://www.facebook.com/AKidAgainCleveland). We got to go to Cedar Point, they fed us, and we got to visit Dinosaurs Alive (which sucked btw. DO NOT shell out the $5 for it. REALLY not worth it!). Anyway we had a blast and Lily got to ride tons of stuff. I love how they have all the old rides from when i was a kid plus a whole bunch more new ones.

Lily had a really good time driving Tracy around. CJ thought he was awesome driving around the antique cars and both the kids loved doing the bumper cars for the first time ever. We didn't take Taz with us because it's been so hot here lately. I am really glad we didn't because it was a really hot day! So now we are just getting ready for the kids to start school. Lily is so excited about starting Kindergarten and I am so excited about having the kids in school! lol As always, thank you for reading!!

And here we go again!

Yeah, so I am sure you can tell by the title of this post, you know where this is going. Last Tuesday, Lily broke her streak. She had been almost seven months without a hospitalization. Well, that night she and I went to be. She fell asleep and was sleeping peacefully when she sneezed twice in her sleep. THAT was all it took. Eyes wide, frozen in place. She was a having a seizure, a status seizure. Diastat stopped it but since it had been so long since her last status off to the ER we went. They kept her over night, but as usual by like 4:00 am she was back to her normal self. If was a quick one, a bit different from here others, but it seems like she rarely has the same presentation every time.

Taz did alert and yes, I mistook it for him trying to get attention. Oh denial is an awful thing. lol Right before Lily fell asleep he was up on the bed standing over her. He NEVER stands on the bed. If he wants to get across the bed, he crawls. But we were playing with the cat, so I thought he was just being jealous. NOPE. One of these days I will actually believe him.

I know a great deal of it was that I didn't want to believe that that was what he was doing. After all it had been so long and I really had my hopes on that they were gone. I was a big old cry baby mess by the time the EMT's got here. But i am happy to report that I didn't and have not fell into the normal depression I get after she has a seizure that lands her in the hospital. At least that's progress on my part!

So they upped her nightly dose of Lamictal, doubled it actually. Also they told me to give it to her earlier. I was giving it to her at bedtime but now I have to give it to her at least an hour before bed. These Dr's crack me up. I have been told that the meds have to build up over time in the system to work, but now it's an on demand thing? lol I wish they would just say "Hey we aren't sure which it is so make sure you give it to her early enough so that it will have time to get into her system before she goes to sleep!" lol

In other news, Lily will be starting Kindergarten in the fall and Taz will be going with her. She is really looking forward to going and I think she has no clue how popular she is going to be, being the kid at school with a dog. I wonder how many Kindergarteners are going to tell their parents they want to take their dogs to school too? ;-)

As always, thank you for reading!